Donald Trump’s War On Science and Public Health Targets Dementia Patients
Saturday, February 22, 2025
As Donald Trump continues his assault on democracy, another battle is raging: MAGA’s war on science and public health. Just today, Trump laid off a significant number of staff at the National Institutes of Health Center for Alzheimer's and Related Dementias (CARD).
As you may know, I have been diagnosed with frontal-temporal dementia (FTD), one of the diseases researched at CARD. FTD is a terminal diagnosis, but researchers have been on the cusp of treatments. In short, Trump’s decision to terminate dementia researchers will shorten the lives and harm the well-being of everyone facing a dementia diagnosis.
As I understand it, FTD is different from typical Alzheimer’s, where the primary concern is memory loss. The UCSF Memory and Aging Center, where I was initially diagnosed, notes that FTD is a: “progressive degeneration of the temporal and frontal lobes of the brain. These areas of the brain play a significant role in decision-making, behavioral control, emotion and language.”
Typically, after symptoms arise, the life expectancy for those with FTD is 7-13 years. As for me, I’ve been told that because the progression of the disease has thankfully been slow, my life expectancy is in the neighborhood of 15-20 years. It's also possible the progression will increase. Only medical research will ultimately allow the possibility of a normal lifespan. Honestly, I’ve been counting on that.
It's been a few years since I stopped working. I’m no longer allowed to drive, and I experience hallucinations and night terrors. My decision-making is impaired. With my doctors at Oregon Health and Sciences University (OHSU), my family and I have worked to build guard rails. Over time, all this will worsen.
What will happen with Trump’s cuts to CARD? Here’s a shocking prediction from the National Institute of Health: “Researchers estimated that 42% of Americans over age 55 will eventually develop dementia.”
Trump’s act to cut dementia research will mean more deaths, quicker deaths, and a diminished quality of life for both patients and caregivers.
Dementia is not a partisan issue: it impacts Democrats and Republicans alike. In the past, dementia research has had broad bipartisan support.
People of faith need to tell Congress that we reject cuts to medical research. Jesus spent his life healing the sick. We can do the same with all the tremendous gifts God gives us. Call the Congressional switchboard at the 202-224-3121. Ask to speak to your House and Senate members. Tell them to reject Donald Trump’s immoral cuts to dementia research.